Global Cure for SCD Conference 2021: Q&A Session

For Community and Family Day, we focus on hearing from members of the sickle cell community followed by group discussion where community members were able to ask questions to a panel of physicians in attendance.

What is curative therapy for SCD?

Myeloablative and non-myeloablative curative therapies

History of treatments to cure SCD and current misconceptions

How commonly used are the different treatments to cure SCD?

The importance of clinical trials for curative therapy

Finding clinical trials for SCD treatment

Qualifications to receive curative therapy for SCD

Costs of curative therapy for SCD

Costs of medication following curative therapy

Hazards of medical tourism for curative therapies

Life effects of curative therapy

Major concerns of SCD community members before and after curative therapy

What happens with avascular necrosis (AVN) after curative therapy?

Mental health support for persons receiving curative therapies

How does curative therapy affect fertility?

Creating a global registry to follow health after curative therapy treatments